Neurologist Appointment

Matt and I took Nathan to his neurologist appointment yesterday and we actually had been assigned a different doctor.  I was pretty sceptical going in to the appointment thinking it would be the same song and dance of just wait it out and see if he gets better. It was actually just the opposite.

The new doctor seemed so much more concerned then anyone we had seen so far.  She asked a lot of questions about his development, if he was talking, his hearing, etc.  She talked to us about how he was doing on the Kepra and was the first person to say that it was unacceptable for him to be having any seizures.  When she said this I felt like we might actually get this figured out.

The doctor increased his medication to 2 ml twice daily and we are going to have him stay on it for one more week.  If Nathan has any more seizures after one week the doctor will put him on Fenobarbital and do some blood work testing.  The hard thing about putting Nathan on fenobarbital is that you have to monitor their blood levels and liver every couple of weeks and that means more needles, more doctors, and more tests. 

Matt and I just haven't been sold on the Kepra.  We think it is helping to control the seizures but its definately not preventing them.  The doctor did say though that fenobarbital is extremely effective at preventing seizures and that usually kids respond well to one or the other but not both.  Matt and I are both hopeful now that we are close to stopping Nathan's seizures, either by the stronger Kepra or by switching medications.